Thursday, January 15, 2009

Delurking Day '09


Okay...so I'm a few days late for it to actually be "Delurking Day." What's new? I will unofficially declare "Delurking Week." Some of you in my personal friend group are new to the blogging world so I'll explain. A lurker is someone who stops in and reads your blog but never let's you know. You don't know it but bloggers love you and want to be able to thank and fully appreciate you!

So.....in the interest of all that stuff I'm throwin' at the wall hoping some will stick.....would you mind just taking a moment and leaving a comment? Or maybe you really want to make my day and you would be willing to sign up as a follower. Yes, I AM that needy and pathetic. You have no idea that my daily self-esteem is completely based on whether or not I hear from people. Yes, I AM that shallow. Okay, maybe there is more to me but I really don't have time to plumb it and find out. In fact, there are a lot of plumbing issues around here I don't have time to get to.

Go ahead, make my day and tell me you love me or hate me.
Nevermind that last part.

Observational Twitter 7

Esoteric:

"Think outside the box." Unconfirmed Origins

Exoteric:

"What are you doing in a box? You have bigger issues than your thought processes." Robynn Reilly

Copyright 2009

Wednesday, January 14, 2009

Hot Lot Shot


I have a love/hate relationship with vaccines. I think some are necessary and have saved many lives. I think others endanger our health by overtaxing our immune systems all at once (especially the immature immune system), are way over utilized, and expose us to more potential danger than we would experience without them.

Now, in our family, there are those of us (me, my son, my mother) who tend to have problems with medicines and even some vitamins. I am hunting down why as I write but testing points toward porphyria which means we would have an enzyme missing that would clear porphyrins from our blood stream. Porphyrins are a naturally occurring by-product in blood. Everybody makes them. But if all is well, they are quickly cleared from your blood and eliminated. If you have porphyria, you have a much harder time with this process. Medicines, some vitamins, alcohol, even a few foods can cause them to build in your system and poison you. So, it's important we try to stay as healthy as possible and not have a need to take pharmaceuticals because if, and when, you get sick from this, you are SICK. It can cause damage in your body, especially the liver and nerves, and, in some cases, can cause total paralysis and even death. Is that what we are dealing with for sure? Can't answer that yet. All my tests are currently with the American Porphyria Foundation specialist and he is reviewing them but I WILL let you know, whether you want to or not!

Now, it was in that mindset we visited my son's immunologist last week. What had been ailing him for about a year had resolved without medical intervention. (Insert GREAT thankfulness to the Lord here.) However, the doctor said (and you know how I feel about doctors) "According to his test he has very little resistance to pneumonia and is at great risk. I think he should have the vaccine." Hmmmm.

There probably aren't many of us who don't at least stop and think when the word "vaccine" is mentioned to us these days. We've heard, read, and seen so much about the risk involved. Because of our issues, I would additionally ask myself, "Wouldn't it be better to try to prevent something from happening since we don't process medicine well?" And that's why I said, "Well...okay." The physician saw my reticence and assured me it was safe and he had seen no negative reactions. The nurse came in and shot Hunter in the arm.

On the way home he told me getting the shot hadn't hurt at all but his arm felt like he got sucker punched by the Incredible Hulk. I know shots can feel that way sometimes so I didn't worry. The next day was our San Francisco trip and he didn't feel on top of his game but I figured it was just being drug out of bed too early. He complained of a little achiness. By the time we made our first stop in Pleasanton, he found it painful to bear weight on his right ankle. Weird. I asked him if he had been sitting on it, tucked underneath him. Nope.

Throughout the day he began to feel more exhausted and fluish. He slept all the way home and when we arrived he could barely put his weight on his ankle as the joint was inflammed. He felt slightly feverish and I tucked him in bed thinking he was probably having a reaction. By 5am he was miserable and running a fever of 103.5. His arm was twice the size of the other one and the red mark where the needle had been inserted was as big as a grapefruit. Bruising began to appear on his hand. I called the office and the on-call doctor told me to administer Benadryl, along with the Advil I had been giving him. That helped to break his fever. I would have considered the emergency room if I had any confidence they wouldn't make it worse, and in our area, make him wait for 12 hours before being seen.

His fever continued to rise and fall through Monday night. I iced his arm and watched him closely, calling the doctor's office again Monday and telling them I wanted that shot reported to the CDC. I got the Lot number and manufacturer and filed two reports myself.

Here's the real rub: When I went to file the reports there WAS no vaccine designed to be given to children except "7 Valent Pneumovax." Hunter was given "23 Valent Pneumovax." That means that, all at once, he was vaccinated for 23 different strains of pneumonia. Only adults are supposed to receive that shot. Children are not small adults. Their systems can only handle so much. It's not a lawsuit, not that I'm looking for that; it's not unheard of, I suppose; but it is HIGHLY imprudent. And I didn't know so I didn't ask.

That's why I'm encouraging you: ASK, ASK, ASK. Make another appointment. Go home and research and don't be pressured into doing something you might regret later. You can always go back. Not getting the vaccine TODAY is not going to put your child (or you) in harm's way unless there is serious compelling evidence to the contrary. I wish I had thought of this and researched before I said yes.

On Sunday, a friend of mine was at church and told me she had experienced a similar reaction to this very shot and she knew of someone else who had as well. Three people in this circle and the DOCTOR had never heard of negative reactions? Really? Can I tell you I think he was being less than truthful? I reported the shot and found out there were four other complaints about it possibly being a "Hot Lot." A "hot lot" is a shot from a batch of vaccine that has a larger number of reactions than normal. For your information the shot is as follows: 23 Valent Pneumovax Lot # 0669X - manufacturer is Merck.

Hunter is better today. He is hardly limping now and the fever is gone. He has resumed normal activity but his arm still has redness and a 3" diameter lump. Why didn't the doctor offer me the lesser vaccine that would have been better for a young person? I don't know. Have I ever mentioned, "I Hate Doctors?" Sorry.....there really are some wonderful individuals but there simply seems to be a bizarrely disproportionate number who are careless at best, and reckless at worst.

Be well, my friends, and thrive. Do not be bullied by the medical establishment. You are your own best advocate and that of your children and other family. Research, pray, and make informed decisions. Vaccine may be the right choice. It has been for us at times and we have declined other recommendations. I just want you to know what you are saying yes to, and why. I know I won't be blindsided again.

Copyright 2009

Saturday, January 10, 2009

Let the Games Begin

Photograph by Hannah Reilly 2009

I love San Francisco. I would make up almost any excuse to hit the Bay Bridge and watch The City skyline loom into view. Restaurants, museums, architecture, miles of rolling hills and narrow streets, cable cars, crystal air, the Golden Gate. It’s all there. If you have to endure Frankenstinian medical procedures to experience this, really, so what?

Yesterday I played another round of, “What the Heck’s the Matter with YOU?” at UCSF. In this game contestants dress in bizarre outfits designed to reveal their rattiest underwear while simultaneously enduring pranks thought up by the producers of “Fear Factor.”

All I can say is it was dark in my bedroom at 5:00 a.m. as I rummaged through my dresser drawer. Don’t we all keep at least a few pair of underwear that really should be thrown away but we know, when the laundry piles up, we might need them? They aren’t really fit for being in an accident but they will cover your posterior well enough for sweatpants and yard work. Well, those are the ones I wore. Of course, there was no way to discover this until I stood in the torture chamber preparing for my first round of competition.

The torture chamber is purposely deceptive and distracting. It is splashed with brilliant sunlight and designed to put you off guard. The room is fairly small but elegantly decorated. One wall displays an open-aggregate column with an arch right out of a castle motif. This would distract you except for the opposite wall which is solid windows overlooking San Francisco, the Presidio, and a huge expanse of the bay. And all this from an 8th floor perspective. The day must also be perfectly clear to enhance the effect.

It was in this environment that I donned my costume: the flimsy gown we all know so well. The one Dave Barry describes as making you feel more naked than if you were naked. However, when your underwear has gone as far south as mine had, you actually long for nakedness. Too bad. My only hope was the thought that perhaps I could lie on my back for the entire procedure and use my half-gown to cover my front half. As the “doctor” walked in she smiled and told me to roll onto my side.

Now, I put “doctor” in quotes because she wasn’t a full-fledged doctor yet. She was still in her residency. This is important because they don’t really want someone highly skilled to perform these tests. It might make the procedure entirely too painless to be entertaining for them.


As I lay gazing into the distance at the Fallon Islands, imagining myself running free and unseen in brand new underwear, I heard her voice, thick with an East Indian accent, announce, “I’m going to administer a series of shocks.” What she meant was a “series of shocks” in much the way a police officer means it when he yells, “STOP!” just before he tasers you.

In this round they are checking you for nerve responses. If your nerves are somewhat damaged your only response might be to bounce up off the table, smash into the ceiling, and land back on the table. Or you may launch face-first into the window and contort your features. If your nerves are all completely intact it could be bad for them because these shocks will catapult you across the room, leaving you in a standing position, where you are then free to beat them about the face and head with their own equipment. Fortunately for them, mine were not at the top of their game. We repeated this step several thousand times with her shooting at me from every corner and jumping out from behind chairs. When she would find a particularly damaged and painful place, she would then proclaim, “I am going to do this nine times in the same spot.” Apparently, they don’t do it ten times because the smell of burning flesh is too unpleasant for the physician.

Next comes the bonus round. In this event, needles are shoved into the muscles of your legs and feet. Just when you think you might black out or lose control of your bladder, the almost-a-doctor tells you to contract your muscles by using them to push against something. You volunteer the back half of her brain via the front half, but she only offers her hand. Now, at this point, you get Charley Horses big and violent enough to compete in a rodeo. She will then leave the room and come back with a real doctor so he can participate, too. He will say things like, “Let’s pull this needle out and shove it in her eyeball” or maybe he just mentions repositioning it, but it will all sound the same to you. He pulls the needle out and jams it in somewhere else and when you don’t celebrate this by singing, “The Hills are Alive!” he will exhale dramatically, punctuated by his tongue flicking back and forth between his lips. They will continue to tag-team like this for another twenty minutes knowing they are safe since all their needles have effectively sewn your muscles together.

When they leave the room you and your ratty underwear are free to crawl over to your clothes and salivate on them. They will then return to tell you your test reveals more abnormalities but they have no idea why. At this point they will thank you for playing and invite you to return in six-months where they will introduce the newest event: “Toenail Removal for Fun and Profit.”

Your parting gift is the realization you may now head into the heart of The City to let it heal your wounds.

That’s what I did. The kids and I had already strolled the Botanical Gardens in Golden Gate Park that morning. Now it was time to limp toward comfort food and fortify myself for cultural pursuits.

The price of admission for this scintillating soiree may have been dear but, hey, so is beautiful San Francisco. I'll be back and I'm bringing my toenails with me.

Copyright 2009

Thursday, January 8, 2009

Have Bluetooth - Will Travel




Headed for San Francisco for the round of doctors again on Friday.....if you're driving in the City....sorry!
(Just in case you don't know what I'm talking about....you might want to check out this post.......)

Wednesday, January 7, 2009

Corners

Day
is
done
corner
cleaned
doors
are
open
no
piles...
at
least
not

in

that

corner....

Big Girl Panties

Thank you to all of you for your prayers and thoughts these last few days. They have helped me more than I can express. I've read and reread your comments. Do you all do that? It's like a little visit each time and it helps all over again.

But now, it's time to put on my big girl panties and move forward a little.

I have a lot of ideas in the cooker for articles. Just waiting for my heart to cooperate. It will. In the meantime, nothing says "Buck up" like organizing. That's why I do it so rarely. I don't like being told to "Buck up." It's rude. But today I'm gutting a corner. Wow. Nothing like long-term committment. But it's a corner that actually has bi-fold doors off the entry leading to the study/schoolroom. I haven't opened them in quite awhile. Didn't really want to as I needed to use it as wall space more. I put the old Mission rocker in front of them. We bought the rocker from a gal down the road who had a true "estate" sale. Her grandfather sat in it out on his front porch for as long as she could remember. The sale wasn't advertised and there weren't many people so a lot came home with us. We bought a couple of quilts, some china, furniture. But it has all remained "Mel's." That was her name. We thought her identity should come with the treasures.

ANYway...WHAT was I saying? (You should try listening to me in PERSON. My friends that have to can testify, I'm sure...) Oh....well, the rocker has quite a following now. Many have gathered around migrating down from shelves, out of closets......runaways from filing cabinets. The "trash-y" are even there (but what's a gathering without a little color?) So it's time to chase them all off and back to where they belong. And open the doors. And shed light. And downsize. And distract myself. And actually have that sense of accomplishment that is healing in its own right.

Wish me luck....I'm goin' in and hopefully, coming out with something to show for it besides a clean rocking chair and 315 little piles.